Good Practices in Strengthening Participation of Persons Affected by Leprosy in Leprosy Services
In this booklet, we introduce eight cases from seven countries on Strengthening Participation of Persons Affected by Leprosy in Leprosy Services (SPP).
Through their experience with leprosy, persons affected by leprosy have obtained knowledge about the disease and its treatment, and the wisdom and the power to overcome the stigma and discrimination associated with leprosy. The World Health Organization (WHO) values this experience in terms of expertise in leprosy control and promotes the participation of persons affected in national leprosy control programs, which require both medical and social approaches. Guidelines for strengthening the participation of persons affected by leprosy in leprosy services were published by WHO in 2012, and are publicly available.
Leprosy has had a low profile within health agendas of late due to the sharp decline in the number of patients over the past three decades. As a result, leprosy control programs are getting weaker, although there are still more than 200,000 persons newly diagnosed with leprosy annually around the world. The participation of persons affected by leprosy in leprosy programs is thus very important in terms of invigorating the programs and sustaining quality leprosy services.
We hope that the cases introduced in this booklet will encourage more persons affected by leprosy to participate in leprosy control programs.
My Family, My Life and My Work
Dr. Yo Yuasa served as executive and medical director of Sasakawa Memorial Health Foundation between 1975 and 2005, and as advisor until his retirement. He became a leading figure in global efforts to eliminate leprosy, not only through his work with the foundation but also as president of the International Leprosy Association and through his contributions to various WHO and other expert committees. A thorough account of his work and views on leprosy elimination was published in 2015 as A Life Fighting Leprosy, a collection of Dr. Yuasa’s speeches and writings. In this companion volume published posthumously in 2017, we learn more about the man, his upbringing and the people and experiences that shaped him.
Tribute ~ Remembering Dr. Yo Yuasa
On 7th September 2016, Dr. Yo Yuasa, former Executive and Medical Director of our Foundation passed away at the age of 90. Dr. Yuasa was a dedicated doctor who dreamed of a world free from leprosy and its related issues and devoted his life to make the dream come true. During his course of long journey to leprosy free world, he encountered many good partners and friends. This memorial booklet is a memoir and a tribute to Dr. Yuasa’s life fighting leprosy enclosing messages from those partners and friends.
Tribute, Remembering Dr. Yo Yuasa（PDF 2.5MB ）
湯浅洋先生を偲んで（Japanese, PDF 2.5MB）
A collection of speeches and writings of Dr. Yo Yuasa, former executive and medical director of our foundation who also served as president of the International Leprosy Association from 1993 to 2002. Dr. Yuasa devoted his working life to fighting leprosy. He played an important role in the introduction of multidrug therapy to treat leprosy, describing himself as one of the drug regimen’s “most radical protagonists,” and believed that delivering the cure to all who need it is a moral responsibility of public health policy.
A Life Fighting Leprosy（PDF: 1.54MB）
Since 2006, at the initiative of Mr.Yohei Sasakawa, Chairman of The Nippon Foundation, an annual Global Appeal to End Stigma and Discrimination against People Affected by Leprosy has been delivered.This appeal has been an attempt, both to raise public awareness through the media, and to draw in the support of world leaders, representatives of people affected by leprosy, and organizations concerned with human rights in general.
GLOBAL APPEAL 2013 (PDF File, 353KB) GLOBAL APPEAL 2012 (PDF File, 771KB) GLOBAL APPEAL 2011 (PDF File, 751KB) GLOBAL APPEAL 2010 (PDF File, 527KB) GLOBAL APPEAL 2009 (PDF File, 601KB) GLOBAL APPEAL 2008 (PDF File, 92KB) GLOBAL APPEAL 2007 (PDF File, 132KB) GLOBAL APPEAL 2006 (PDF File, 93KB)
Voices of people who have overcome the challenge of leprosy – their despair, their challenge, their hope and victory. (18x18cm, 24pages) The Nippon Foundation Library — Voices from the Heart
A pictorial manual to assist frontline health workers and health volunteers to know the symptoms, diagnosis and treatment of leprosy. Produced in 7 languages – English, French, Spanish, Portuguese, Nepalese, Hindi, Indonesian
A collection of inspiring and uplifting life stories of people who have experienced leprosy and have overcome stigma attached to the disease.
A booklet to introduce workcamps by student volunteers at leprosy villages in China, a unique approach that has brought changes to the lives of the people living in leprosy villages, to the participating student volunteers, to the people living near the villages, and to the wider community. HOPE (PDF File, 2.04MB)
Act No. 82 of June 18, issued in 2008 The Act is designed to promote welfare and restore honor of people affected by hansen disease in Japan Act on Promotion of Resolution of Hansen’s Disease Issues (PDF File, 52KB)